Monday, July 28, 2008

Really Tired

Once again the nurse did not show up again. It seems everytime we have something to do the nurse does not show up. We have to be in Atlanta at 8:30 in the morning for a Neurologist appt. so we will have to leave our house about 6:00 am to beat rush hour traffic and make it there on time. So I am staying up most of the night and having to get up at 5:00am to get ready to go. I have a full schedule of things I have to do tomorrow when we get back, so no time for naps. The nurse who usually stays here on Tuesdays will not be coming back because she was caught sleeping several times. So we probably will not have a nurse again tomorrow night. I feel like I can't get a break. Brayden has been very fussy, he is teething getting 4 teeth at the same time. Otherwise we went to see the ENT doctor last week and he said that he would look at Brayden's throat in 3 months to see if his trach can come out. So everyone pray that Brayden can get his trach out.

Monday, July 21, 2008

Brayden had a good day

Brayden had a good day yesterday, he was smiling all day. It is great to see that smile again. We have a busy schedule this week with appointments, I will try to update if I can.

Wednesday, July 9, 2008

Benefit Ride For Brayden August 10th

The benefit ride for Brayden will be on August 10th at 10:00 am. I am not sure of all the details yet but will post them as soon as I know. The ride will start at Walgreens in Ringgold. There will also be a carwash there and food. I think the prices will be 25$ per bike but I am not sure yet on that. Anyone with ideas on other things please feel free to let us know. Brayden has had a good day today. He did not have any ativan all day. He has been pretty calm, but is getting a little spoiled wanting to be held alot. He is holding his head up well now and is looking around and turning his head toward sounds even more than before. We are still not sure about his vision, I think he can see some. He has been very relaxed and had a really good day today.

Tuesday, July 8, 2008

Brayden contiues to improve

Brayden continues doing his HBOT in the soft chamber. He has done 14 treatments so far. He is now holding his head up pretty well and he is turning head to sounds. He is moving his arms more now and grasping things with his hands. His hands are more relaxed now. This is a great improvement for the tight balled fists he has had. His right side still remains very tight and flexed up most of the time but we are woking on stretching him out. Brayden started on a new medicine a Catapres patch, it seems to relax him alot more and he is now relaxing his right arm more. We have good days and bad days with the storming. Yesterday was a bad day with storming almost all day but today has been a good day. We are still trying to raise money for Brayden to get HBOT in a hard chamber, we havent really gotten anything yet. The benefit ride and carwash for Brayden is scheduled for August. Brayden has been smiling more now and that is the best thing of all. The picture is one of him smiling and laughing before his accident.