Thursday, April 18, 2013
Brayden's Baclofen pump surgery went well and we are home now. He is still very sore with the incisions on his back and stomach. He doesn't seem to be in a lot of pain just very sore especially around the pump site. He can start sitting up some today as he has been laying flat for the last 6 days. He only had his pump turned up one time and he is already less stiff than with the oral Baclofen. He has been glued to the tv since we got home because he couldn't see the tv on the wall laying flat in his hospital bed. He missed 5 days worth of cartoons! We are also weaning him off of his artane because they think he doesn't need it now. So the only medicines he will get now are his Prevacid and melatonin at night. So the pump was a good decision. I just wished someone would have done it sooner instead of all the medicine trials that didn't work. He is one tough cookie!
Wednesday, April 10, 2013
Friday will be the 5 year anniversary of Brayden's survival of drowning and Saturday will be our 11th wedding anniversary. Brayden is having surgery Friday to have his Baclofen pump put in. Praying that everything goes well and this really helps him. We will be in the hospital 5 to 7 days after the surgery. I also recently found out that I am going to be a grandma! Say a prayer for us.
Tuesday, January 15, 2013
Sorry it has been so long since posting. As you all may not have known, on Oct. 18th, 2011 I suffered a massive stroke. My right side was affected and I have had to learn to do everything all over again. My mom cared for my children while I was learning how to walk, talk, and how to use my arm and hand again. It has not been an easy road to go down especially having a special needs child who requires a full time caregiver. Brayden has been doing good. He started kindergarten in a new school this year. He really loves school. Here is a quick update on things since the last post. We no longer receive nursing care because the state of Georgia thinks he doesn't need it. We moved to a new house with no stairs & a lot more room. We had some teeth knocked out, at the dentist, while they were being cleaned. We got a new wheelchair and new kafo locking splints last year. We have been working on his meds to help with his tone and he is probably going to wind up with a baclofen pump. We got a new dog last year. Brayden has been doing really well. I'm sure I am forgetting everything but my memory is not so good now. I will try to update more often this year!