Feeling Better Now

Well we have finished up all the antibiotics and Brayden is feeling much better now. We have been dealing with diarrhea and an awful diaper rash from the antibiotics this week. Brayden went to the pediatric ophthalmologist to have his eyes checked this week. They said that he can see but they couldn't tell us how much he can see. They said that his eyes looked good and he did not need glasses. That all of his eye control problems are from his brain injury and nothing wrong with his eyes. He still has alot of the upward gaze but his eye control is getting much better and he seems to be focusing on things more. He definantly understands some of what you are saying to him too because if you say something funny to him he will laugh. We are going for another sleep study Saturday night since he didn't sleep on our first try. We hope he goes to sleep! Not much else going on with Brayden right now. He has been enjoying the warm weather because his nurse Debra spoils him rotten and takes him to the park everyday. He loves to be outside. Finally the last day of school is here. The kids are excited and Brayden loves them being here to aggravate him. We are finally getting the pool fixed after the liner got a hole in it. We may try and see what Brayden thinks about getting in the pool. I think he would enjoy some water therapy because he really loves taking a bath and playing in the water kicking and splashing. I will try and to post some pics up when I update on the sleep study. Hope everyone has a great Memorial Day Weekend.

Finally an update

A few pics from Our trip to Miracle Mountain




Brayden has been sick, ear infection and strep throat. He has been fussy and staying up all night. Our nursing hours decreased to only 8 hours a day since Brayden no longer has his trach. We are having the nurses come from 3 to 11 because he has been sleeping pretty well until now being sick. Kaitlyn has also been sick with strep. Not much else going on. Just getting started back with therapies. Starting to feed Brayden some tastes of food by mouth, which he does not like. But hopefully he will get used to it again---it has been over 1 year since he had anything in his mouth. We had a good trip to Miracle Mountain in NC. 3 weeks seems like forever being there. But Brayden did good with all of the treatments even though he was sick with coughing and congestion about the whole time we were there. We enjoyed meeting the other families there and thank everyone for the great job they are doing there. We have decided on a date for Brayden's second benefit ride for August 1st. The money raised will be used to help Brayden get more hyperbaric oxygen therapy. We have seen great results from the treatments so far and want to continue them. So any help with the benefit ride is greatly appreciated. I will try to keep updated a little more now that things are back to normal.

Halfway done with HBOT

We have done 22 treatments so far and have 18 more to go. Brayden has been doing well in the hyperbaric chamber. He has had a little bit of a cough but otherwise he has been well. We have been tired and hungry from doing the hbot, but things are so much better this time without having to deal with the trach. The weather has been cold and rainy most of the time but it was nice and sunny today. We hope it stays that way. We had a great Easter, Curtis and the kids came up and nanny and pawpaw were here too. Kaitlyn hunted eggs and we ate a good dinner. So everything is going good for now.

Doing HBOT at Miracle Mountain

We have done 4 sessions of HBOT so far. It is snowing here and it is cold. We have gotten 5 inches or more of snow. It has been snowing all night and all day. Brayden is tolerating the HBOT very well this time. We are just sittin around watching the snow being bored, but glad to finally have internet connection! Kaitlyn has been playing in the snow all day and is so excited and wild because we hardly ever see snow. Brayden has been good and smiling and laughing all the time. We hope it warms up soon.

Brayden has been sick and was in the hospital Thursday and Friday. He has the flu and was dehydrated from vomiting. He has a horrible cough and really congested and really feels crummy. He is starting to feel some better now but is still pretty sick.

My Little Prince

Glitter Graphics

Happy Boy

Brayden seems to be all smiles now, laughing all the time. He is doing really well without his trach, too! He is having some sleep apnea and is wearing oxygen as needed at night, but otherwise he is doing really well. We are going for a sleep study later this month. We hope everything continues going well for him. We are still doing OT,PT,and ST. We are going back for more Hyperbaric Oxygen treatments in April and we may try to have a small fundraiser before then. I will post up as soon as we decide on something. Everyone pray that Brayden stays well and continues to make improvements.