Saturday, June 7, 2008
Brayden is still having neurostorms. More frequently than before now. The only thing that helps is giving him ativan, which makes him sleep all the time. He has been crying alot, nothing seems to ease him. I just feel so helpless because nothing seems to help but knocking him out with the ativan. He finally got his bath seat so now he can take a bath in the bathtub!!!! We are still trying to raise money for his HBOT. Brayden went on his first outing on Friday. He went to see his pediatrician for a follow up since his hospital discharge. We are only getting nurses 12 hours a day at nights now from 7pm to 7am. Between all the other things I have to do and taking care of him, I am totally exhausted. I will try to update more often but I am finding very little time to do things now.