Thought it was about time for an update! Summer has been going well. We went to Myrtle Beach for 6 days, our first vacation in almost 3 years! We had a blast. Brayden loved being in the water. We used our camper for the first time and it was great! We had all of Braydens stuff already in there and no carrying tons of stuff into a hotel room. We stayed at Pirate Land Camping Resort and it was amazing. We were right on the beach and they had tons of things for the kids to do. Brayden's favorite was floating around in the Lazy River.
Brayden has been pretty well since school has been out. We are still doing therapy without much progress being made right now. We are still waiting on the Stander, well over 6 months of waiting for it! We still have nursing care for 24 hrs per week for now and hope that it doesn't change. I need a break sometime. We are still thinking about getting Brayden's tonsils removed. They are very large and have needed to be removed but we are just scared to do any type of surgery on his throat with his already existing throat and breathing problems. We hope to do more botox soon to help with Brayden's leg scissoring and stiffness. Otherwise, we are off to a great summer!
Here are the Vacation Pics!