Monday, May 19, 2008

Continued healing

MONDAY, MAY 19, 2008
Brayden continues doing well in Rehab. Dad has been at the hospital with him over the weekend learning to do all of his care. Brayden did have some storming episodes lastnight, high heartrate, very tense and sweating alot he had to be given some ativan. He has been crying alot lately. The doctors did say that they would write an order for us to get the hyperbaric oxygen treatments. They suggested we see about getting tubes put in his ears first though. We just pray for his continued healing and hopefully we will get to come home soon.


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FRIDAY, MAY 16, 2008
Brayden is doing well in Rehab. He is continuing with Speech Therapy, Physical Therapy and Occupational Therapy. He got a regular bed in rehab instead of the baby bed he had in Icu, so we are able to lay with him and cuddle with him now. He is also only wearing the heated trach collar at night and his feedings are not continuous now. We can actually hold him without a bunch of tubes and wires connecting him to something.
Braydens insurance only approved him to be in inpatient rehab for 7 days so we may be coming home sooner than we thought. They are already setting up home nursing care for us. Brayden had some new splints made for his arms today. He is still very tense and tight in his arms most of the time. They tried a speaking valve (passy-muir valve) on his trach but his trach is too big for him to breath around it. They have ordered him a smaller trach so hopefully he can use the speaking valve. It will take 3-5 days to get the new trach. So hopefully he will be able to make some sounds soon.


WEDNESDAY, MAY 14, 2008
We moved to Rehab today!!!!!!! Brayden contiues doing well and he even got up in a wheelchair yesterday. I pushed him all around the TICU unit not connected to any wires or anything. He is starting to act like he is trying to cry more now. He is looking around more now too, but he still isn't tracking or focusing on anything. Maybe we can start to make more progress being in Rehab now.


WEDNESDAY, MAY 14, 2008
We moved to Rehab today!!!!!!! Brayden contiues doing well and he even got up in a wheelchair yesterday. I pushed him all around the TICU unit not connected to any wires or anything. He is starting to act like he is trying to cry more now. He is looking around more now too, but he still isn't tracking or focusing on anything. Maybe we can start to make more progress being in Rehab now.
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MONDAY, MAY 12, 2008
Brayden continues doing well. He is starting to look around even more and move around some more. He will make a face to something he does not like. Physical Therapy continues working with him while we are waiting on approval for Rehab. He has a little chair he has been sitting up in and he has also been up in a wheelchair. He has his new braces for his feet now. His lungs are clear now and he is doing very well with the trach.


FRIDAY, MAY 09, 2008
May 9, Brayden is continuing to do good on the heated trach collar. His secretions are a lot less now. He seems to waking up more and moving his eyes around but still not focusing on anything really. We moved out of the PICU yesterday because he is now stable. We are in the TICU, room 5. We are still waiting on approval to go to Rehab.


WEDNESDAY, MAY 07, 2008
May 7, Brayden is continuing to do good on the heated trach collar. His secretions are a lot less now. He seems to waking up more and moving his eyes around but still not focusing on anything really. We moved out of the PICU yesterday because he is now stable. We are in the TICU, room 5. We are still waiting on approval to go to Rehab.


TUESDAY, MAY 06, 2008
May 6, Brayden is off of the ventilator and on a trach collar today. He has been doing good with it, breathing all on his own. He has been a little more alert today, moving around some too. Hopefully he will continue doing good on the trach collar and we can be getting out of the PICU.


FRIDAY, MAY 02, 2008
They are weaning him off of the ventilator and continuing to wean him off of the sedation medication. He will start back on the methadone to prevent him from having any withdrawl symptoms. We have now been in the PICU for 22 days.

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THURSDAY, MAY 01, 2008
May 1st, Brayden's 1st trach change was done and the paralytic medication is stopped and they are weaning him off of the sedation. He is still on the venitlaor.

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