Tuesday, April 12, 2011
If I could turn back time
3 years ago today our lives were changed forever as we began our journey of healing. Who would have imagined that something like this would happen. It was such a perfect day. I would give anything to be able to turn back time to have my perfectly normal little boy back.
Today is a sad day as we mourn the loss of the little boy you used to be. Today is also a happy day as we are so thankful to still have you with us in our lives. We begged, pleaded and prayed for you to stay with us and you did. You are my little fighter who never gives up.
You came back to us just as as a shell of the little boy we once had. You looked the same but everything was gone. Nothing would ever be the same. It has been a tough journey so far but we are making progress. We have slowly been getting pieces of you back and we will never give up until you are whole again!
We are so glad to have your infectious smile and laughter back. You infect everyone you meet with your happiness. You were meant to do great things in this world for you have cheated death more than once in your lifetime already. We Love you ♥
Well it has been a while again since I last posted. I thought I would give an update. Brayden has been doing very well. I think we have finally gotten his medicines adjusted right and he has been great. No more incidents of biting his finger! He has been enjoying the warmer weather and getting to go outside...minus the mosquito bites from the trip to the park.
On a good note, we did get a new van. It is not brand new but, it has a wheelchair lift! No more lifting that heavy wheelchair and getting him in and out of it into the car seat. So much easier and no more back breaking lifting that heavy wheelchair.
Spring break was good with a little bit of allergies flaring up. Brayden continues doing regular therapies at school and at Advance For Kids. We are trying to possibly get a gait trainer for him, just hope it doesn't take a year like the stander did. His sleep study that was done showed no desats in his oxygen level while sleeping. So no more oxygen needed now!!!! We have come a long way from that trach baby! Keepin on, Keepin on with the progress!!!
"May today there be peace within. May you trust that you are exactly where you are meant to be. May you not forget the infinite possibilities that are born of faith in yourself and others. May you use the gifts that you have received, and pass on the love that has been given to you. May you be content with yourself just the way you are. Let this knowledge settle into your bones, and allow your soul the freedom to sing, dance, praise and love. It is there for each and every one of us." ..."
— Mother Teresa