First week of no school and Brayden has to be sick. He is feeling better now but still has coughing and congestion. We were at the lake Sat and Sun and he had a good time despite feeling so crummy. We are going to have some fun this summer and sleep late every day!
We have started back on Baclofen along with the Artane to help with his tone. I missed our appt with the rehab clinic and the next available one isn't until July 20th. We are going to see about getting botox again in his hamstrings to help with his tone. Waiting 2 months for an appointment aggravates me.
Our nursing hours are being whittled down to 16 hours a week thanks to GAPP who says he doesn't need nursing care. Yeah, you come take care of him for a day and you'll change your mind really quickly. Not even going to get started on that subject.
We hope to have all the sickness out of the way! We are ready to have some fun in the sun!****Happy Summer******
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6 comments:
Hey my name is Stephany i have been reading your blog, hoping you will update wanting to know how your sweet little man is.
thank you ..
Hi Brayden
My name is Jenna. You are a brave courageous fighter, You are a special miracle from god, a gift from above, earthly angel, a smilen hero.
I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.
I wrote this poem
Each of us are Special
Each of us different,
No one is the same
Each of are us are unique in our own way,
Those of us who have challenges, we smile through our day.
Those who of us who have challenges, we smile through our day.
It doesn't matter what others say
we are special anyway.
What is forty feet and sings? the school chior http://www.miraclechamp.webs.com
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